Category Archives: Recipient Story

Blood Recipient, Leukemia Survivor Turned Advocate

Clare Scheller_FB

Clare Scheller, blood transfusion recipient and inspirational blood donation advocate, understands the importance of giving the gift of life.

Imagine graduating from high school, while preparing to enter college, and suddenly during your shift working as a summer lifeguard you start feeling so dizzy that you are sent home. Your mother takes you to see your family physician for blood work, because you are still feeling uncharacteristically weak.  When you arrive home, your mother gets a call from the doctor that your blood work was irregular and you must travel to Riley Hospital for Children at IU Health and prepare for a multiple-day stay.

Clare Scheller, 21, doesn’t need to imagine because this was her reality.

 “My mom and I both became extremely worried deep down inside,” said Clare, “but we assured one another that it was probably a mistake or some kind of virus that was making my blood counts abnormal.”

 Her arrival at Riley was met with various tests and questions.

 “I could tell that there was definitely something wrong with me,” said Clare.

 After days of nervous anticipation, Clare was diagnosed with Acute Lymphoblastic Leukemia. At this time, she began chemotherapy treatment.

 Unfortunately, Clare’s woes didn’t end there. Pains in her lower left leg caused her to require immediate attention at Riley. Originally, Clare and her mother assumed the pains were merely chemo side effects. “As my parents were later told, while I was in a medically induced coma in the intensive care unit,” said Clare, “I had developed a life-threatening infection that was sending my body into septic shock.”

 Her doctors realized to restore Clare’s health they would need to remove her leg. However, Clare had lost so much blood her doctors had doubts that Clare would survive surgery. Clare’s parents made the painstaking decision to allow leg amputation surgery to save her.

 Gratefully, the surgery was a success. Prior to undergoing the amputation and other related surgeries, Clare relied heavily on blood transfusions. “These transfusions saved my life,” said Clare. “I would not have survived without them.”

 Ultimately, Clare was able to continue her treatment and through rehabilitation she learned to walk again. After spending a total of four months in Indianapolis, Clare was well enough to return home to Evansville.

“I continually visit Riley once a month for blood work and check-ups,” said Clare.  “I can walk with a prosthetic leg and I’m getting back to an independent lifestyle, with being a full time student.

In July 2012, Clare completed her chemotherapy treatment and is now in remission. She attends University of Southern Indiana where she studies public relations and advertising, and is a proud member of the Delta Zeta sorority.

 Clare and her family know firsthand the great need for blood and blood donors, and they are committed to spreading the word and putting in the work to pay it forward. Her family has continued to support our life-saving mission by donating and hosting blood drives.

Clare and Theresa

Clare and Theresa are currently members of the exeuctive committee for the University of Southern Indiana’s Dance Marathon.

 Clare’s sister, Theresa, initiated a dance marathon at Clare’s former high school while she was in treatment.  

Clare’s mother works in the Nursing and Health Professions Department at the University of Southern Indiana.  The blood drive she hosted, in January, amounted to the university’s most successful blood drive to date.

“I would encourage anyone to give blood because there is a constant need for it,” said Clare.  “Kids and young adults, like me, are getting diagnosed with cancer every day, and blood is a critical part of our treatment.”

Follow the Scheller family’s stellar example and visit DonorPoint.org to schedule an appointment to Raise Your Sleeve.

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Alive and Well Thanks to Hoosiers Like You

Jacob Allen

Jacob Allen, born Nov. 8, 2012, was diagnosed with hereditary spherocytosis (HS), a disorder of the red blood cells, at birth. At two weeks of age, Jacob was treated with a blood transfusion at Ball Memorial Hospital, in Muncie, Ind.

HS is a genetic disorder usually passed down from parent to child and is characterized by abnormal red blood cells, or spherocytes. The spherocytes are round red blood cells that are unusually fragile and rigid.

Patients with HS benefit from transfusion in two ways.

  1. They are supplied with an adequate number of red blood cells to carry oxygen to the tissues.
  2. They are given red blood cells with the ability to change shape and easily pass through the smallest blood vessels of the circulation.

Oxygen is then carried efficiently to all tissues and organs of the body, including the heart, kidneys and brain.

Prior to the transfusion, Jacob’s toes and nails were very white due to the anemia brought on by HS. Fortunately, following the transfusion his color was quickly restored. “After about an hour he was nice and pink,” said Dorothy Allen, Jacob’s grandmother and Indiana Blood Center phlebotomist.

Jacob Allen2

Dorothy is grateful for all the Hoosiers who took time to donate blood. Because of them, “Jacob’s doing really well.”

Dorothy encourages everyone to donate blood, if eligible. “It could be your blood that saves my little grandbaby,” said Dorothy.

Help Indiana Blood Center in our life-saving mission. Schedule an appointment to Raise Your Sleeve at donorpoint.org, today.

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Coming Full Circle

“Donate…it might save someone’s life”

Wayne Grandidge, originally from Rhode Island, moved to Indiana in 2005 with his wife Lorianne. In order to give back to their community, Wayne and his wife began donating blood at Indiana Blood Center in 2005. Wayne never would have guessed that one day he personally would be dependent on this life-saving donation from others.

On February 28, 2011, Wayne and his wife Lorianne received some life-changing news: Wayne had been diagnosed with Mantle Cell Lymphoma, non-Hodgkin’s.  

A month later, Wayne started his chemotherapy, during which he received platelets and blood from volunteer Hoosiers.

Eventually, doctors came to the realization that Wayne would need a stem cell transplant. Stem cell transplants differ from blood transfusions in that they don’t require both parties to have the same blood type. Rather, stem cell matches are DNA-based, and in Wayne’s case, his younger sister Bonnie from Rhode Island was actually a perfect match.

Wayne had the stem cell transplant on September 14, 2011, and six months later, on March 15,2012, a PET scan and bone marrow biopsy showed Wayne to be cancer free!

As a result of this experience, both Wayne and Lorianne have become even more appreciate of the countless donors that take one hour out of their day to make sure blood and platelets are available to local hospital patients. Because of Wayne’s past illness, he is ineligible to donate blood. However,  Lorianne kindly donates in Wayne’s honor.

Wayne has become a huge advocate not only of Indiana Blood Center, but also of Be The Match. Wayne encourages all to not only give blood, but to also join the Be The Match registry. We’d like to thank Wayne for his continued dedication to our lifesaving cause. While Wayne may no longer be able to donate, there are still plenty of Hoosiers who can Raise Tour Sleeves.  Make your appointment today at DonorPoint.org.

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September 5, 2012 · 4:07 pm

Local Guy, Local Story

high quality meat, even better people

L.E. Kincaid & Sons first opened for business in 1921 as a local meat shop in the heart of Indianapolis. Since then, the Kincaid’s team has been providing Hoosiers with high quality and specialty meats backed with their passion and customer service.

When they say service oriented, their passion doesn’t stop at the store counter. It’s the big heart of Dave Rollins, owner and grandson of the founder that makes their story so unique.

12 years ago, Dave’s father was very ill due to a bad heart. He was losing blood and was in great need of multiple blood transfusions. He had a rare blood type so when surgery was scheduled, the hospital made sure it had the blood components it needed. While the doctors were prepping for his surgery, a group of young motorcycle riders was rushed into the emergency room; unfortunately, one rider was in desperate need of that exact same rare blood.

Faced with a difficult decision, the Rollins family and the doctors had to decide who should receive the life-saving products. Was it the elderly man who was there first, or the young trauma victim?

“It was one of those ‘who was more deserving’ situations, the elderly man without much time or the young kid,” said Dave.

Dave and the Rollins family were ready to make the difficult decision to save that young man’s life when Indiana Blood Center made the decision for them.

“Indiana Blood Center scrambled and showed up with enough blood for both people,” Dave said. They pulled off a miracle and found enough for everybody.”

Thankfully, Dave’s father recovered and was able to live for another six months.

Though the time was short in the overall scheme, the extra months were pretty special according to Dave.

A few years later we approached Dave for his help and he jumped at the chance.

“There are a lot of people who feel strongly about the cause,” Dave said.

With the extra help of WFMS and the Hamilton County Beef Association, Kincaid’s has been the muscle and meat behind “Beef Up the Blood Supply” which has been an annual event at the Fishers Donor Center for the last seven years. Dave donates his time and ribeye sandwiches for this event which marries good food, good music and a good cause.

“It’s just payback for some awfully good help,” Dave said regarding his dedicated service to the event.

 “I’m very grateful that the decision didn’t have to be made,” Dave said, “and I credit Indiana Blood Center for that.”

We at Indiana Blood Center thank Dave for his continued passion for his support to the local community. With his help, our mission for ensuring that hospitals have the life-saving blood components they need is strengthened.

Remember, it’s always important to eat a good meal before donation. We think a ribeye sandwich is the perfect meal.

Become a leader in your community, make your appointment now at DonorPoint.org

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Hi my name’s Becky,

I’m a 22 year old wife and mother, and my journey started in August of last year.

I found a lump on my back about the size of a golf ball while giving my daughter a bath. I went to my family doctor to get it looked at. He told me it was probably nothing because I’m so young, it’s not painful and I’m otherwise very healthy, but he wanted to get a ct scan on it anyway. Well, my insurance denied the scan so I just decided to let it go, trusting my doctor was right when he said it was probably nothing.

Jan. 20, 2012- I was walking around the store with my mom, dad and daughter and all of the sudden my back hurt so bad I couldn’t walk. I went straight to my room to lay down thinking the pain would go away, but it just got worse and worse, I couldn’t sit, stand or lay down without it hurting so bad I could barely breathe. I finally asked my mom to take me to the hospital. This is when my mom had seen my tumor for the first time since we went to the doctor back in August. She was shocked when I showed her the lump on my back, double the size of a softball and rushed me in.

The doctor at the hospital took an x-ray, which came back normal so he sent me home with pain killers and told me to go see a back specialist. Long story short, after being sent through about three more doctors, I finally found out I have stage four soft tissue sarcoma.  

After the shock wore off, I made a promise to myself that I would not cry during this experience.  Instead I’m saving my tears for when they tell me I beat this.

Crying because I won the fighting is going to feel so much better than crying because I’m fighting.

I will admit I did shed a few tears when my hair started to fall out.  Even though I knew it was coming, it still really shook me to see my beautiful dark, black hair falling into my hand. This was a big thing for me because my whole life I made sure my hair covered my ears because I always thought they were big. My husband had only seen my ears a handful of times.

I was in the shower washing my hair and went to rinse my hands and when I looked at them they were covered in hair. I was scared to let my husband see me so I slowly walked into the bedroom and he knew right away what had happened. He hugged me and told me I will always be beautiful in his eyes. Who can cry after hearing that?

Before my hair fell out I bought some very nice expensive wigs because I was afraid of what I would look like bald. I wore them for a few weeks while my hair was falling out but once my hair was gone I liked the way I looked and I haven’t worn them since. My bald head is like my battle scar. It shows the fight I’m fighting. I feel more beautiful than I have in my entire life.

My chemo treatments are a little more extreme than most. I go stay in the hospital for three days and get a chemo treatment each day. Then I go home for three weeks and then back in to the repeat the processes. I don’t mind going through chemo because I meet people going through a lot of the same things I am. The only side effect I have had is hair loss and occasional mouth sores. I think I’m taking chemo so well because of my attitude. I really believe that I’m in control of my health.

It’s just like a cold, you always feel worse if you stay in bed.

I make sure I stay away from all the negative things and people. It will only break my amazing attitude. This is also why my family and I chose not to hear my prognosis. I don’t care to know what someone else thinks about my future. I don’t care to know how long someone else lived with my disease. I have always known I’m in control of my future and just cause I have cancer that hasn’t changed!

The only thing that bothers me about having cancer is that everyone “feels sorry for me” I don’t ever want anyone to feel sorry for me.

How can you feel sorry for someone who sees the world in a whole new light, sees the good in everything, and gets to live each day to the fullest? I get to enjoy every smile, every sun set and every sunrise. In a roundabout way, getting cancer is sort of a blessing.

Only because I know I’m going to beat it and I’m going to come out of this as such a better person than I was pre-cancer.  I feel like I was chosen because I’m a strong, stubborn person who will get through this and use my journey as a way to help others get through theirs.

One last thing, the most important thing in my mind, I need everyone to donate blood! I’m having surgery Friday, June 29 and I don’t have very good history with surgery. I’ve had to have five transfusions in the past 18 months.

This is where all of you come in; Indiana Blood Center needs 600 donors a day to meet the needs of their area hospitals.

 If you, as the donor don’t pull through in raising your sleeve, people like me may not have tomorrow.

So I’m asking all of you out there to please donate blood! It’s 30 minutes of your time and one needle to save a life! So please think of us cancer patients and all we go through when trying to decide if donating is right for you.

-Becky Glenn

Mooresville, IN

We’d like to thank Becky for sharing her wonderful story of how her positive attitude and strong will to fight is helping her beat her disease. She needs your help as a blood donor. Raise Your Sleeve in honor of Becky, make your appointment at donorpoint.org.

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Give For Those Who Cannot

Jackson Fetter

Travis Fetter from West Lafayette, Indiana has donated platelets and whole blood countless times at Indiana Blood Center‘s Lafayette blood center.

Travis began giving without ever thinking his family would be the ones receiving. Travis shares his reason for raising his sleeve.

Why do you donate?

I donate simply because I can, when others cannot.

What is unique about your story?

After donating blood and platelets for more than 7 years, my family found itself on the receiving end of those donations.

In May 2010, my son, Jackson, was diagnosed with Leukemia and would soon undergo chemotherapy treatment which resulted in a bone marrow transplant in October 2010. As a result of the chemotherapy, his body was unable to produce healthy amounts of red blood cells and platelets.

Between May and October, transfusions were needed sometimes 3 or 4 times a week.

“Without donations, Jackson would not have been able to maintain his health and happiness throughout the treatment.”

Thank you, Travis for sharing such an inspirational story.

Let’s all Raise our Sleeves for Jackson. Make an appointment to give blood today at DonorPoint.org and tomorrow… You’ll have someone’s undying gratitude.

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The Power of Platelets

Below is a letter we received from Ed and Sandy, parents of Andrew, from Greenwood, Indiana. Ed is a long time blood donor. Giving blood is just something Ed has made part of his life. Until recently Ed did not think much about who was on the receiving end of his donations.

The day after Ed and Sandy’s son, Andrew, was born he was diagnosed with neonatal alloimmune thrombocytopenia (NAIT). NAIT is a rare condition in which the mother’s blood enters the fetus’ blood stream and antibodies from the mother’s blood attack the fetus’ blood platelets. At the time of his diagnosis, Andrew’s platelet count was less than 10% of normal and he was in need of an emergency platelet transfusion.

10/6/2011

Dear Indiana Blood Center,

We just wanted to drop you a quick note to give you an update on our son, Andrew, and also to extend our thanks.

Andrew’s platelet count has been rising since Tuesday. In fact he is recovering so well we may be able to go home a little sooner than originally expected. He is very healthy and very happy!

Thank you also for the outstanding treatment my wife Sandy received when she came in for her platelet donation yesterday. Your staff was very professional and it was greatly appreciated.

This outcome could not have been possible without the work of your team there at Indiana Blood Center and all of your generous donors.

Our pediatrician and the staff at St. Francis did a fantastic job with diagnosis and a treatment strategy, but if platelets had not been readily available when he needed them the outcome could have been dramatically different for our family.

Words cannot express the gratitude we have for the work that you and your team perform day in and day out. They cannot express how thankful we are for the donors who give their time and their blood to help save countless lives like my son’s.

We will keep all of you in our prayers as your staff and your donors continue your remarkable mission of saving lives.

Ed & Sandy

Indiana Blood Center would like to thank Ed & Sandy for sharing their story.

Above is a wonderful testimony proving platelets save lives. But without generous donors, there would be no supply of platelets to provide to our hospitals for patients to receive.

Let’s all Raise our Sleeves in honor of Andrew and his courageous fight for life!

Go to DonorPoint.org and make an appointment to donate platelets today.

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Give the Gift of Life

Mrs. Robin Lynch, Principal of Oak Trace Elementary School, is happy to share how blood donations saved her life in hopes that you will consider giving the gift of life!

On October 30, 2001, I was eight months pregnant and diagnosed with a placenta abruption, which led to an emergency C-section.

During the surgery I went into a bleeding condition called DIC (Disseminated Intravascular Coagulopathy). I lost all of the blood in my body and the new blood I was receiving through transfusions was not clotting. I received a total of 13 units of blood that day before my body accepted it.

At the time of the emergency, my family members asked repeatedly about the possibility of giving their blood, but it was not possible as the blood must come from the hospital supply, provided by Indiana Blood Center, in order to insure it is safe.

My daughter, Shelby, had a rough entry into the world too. She was without oxygen and a heartbeat for 13 minutes. During the surgery the doctors did not think that Shelby or I would make it.

I continue to be so thankful for every day and feel so very blessed to have Shelby. Although she has some delays from her traumatic birth, she is a very happy little 9-year-old girl.

I am very thankful to the men and women who donated blood so that it was available to save my life during my time of need.

We thank Robin for sharing her story with us. Let us all take the time to Raise Our Sleeves in Honor of Robin and her daughter, Shelby. You never know when you will be the one in need.

Go to DonorPoint.org and make an appointment to donate blood today.

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The Britts Give Back

Now it’s your turn to Raise Your Sleeve. Go to DonorPoint.org and make an appointment to give blood today.

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Team BoHawk Blood Drive

Bowen Joseph Milito

Below is an inspirational story written by Corrina Milito, the mother of a blood recipient.

On the morning of March 10th, 2011, Bowen Joseph was born…. a son to us, Corrina & Zack, a brother to Maeve, almost six.

“Moments after birth, every parent’s worst nightmare began to unfold; something was terribly wrong and Bowen was taken to NICU.”

Five days later, Bo underwent a long and grueling open heart surgery where he bled out and required extracorporeal membrane oxygenation (ECMO) for full cardiac and pulmonary support for the coming days.

“Twenty days and countless blood transfusions later, while laying peacefully in my arms with Daddy beside us, Bowen Joseph gave up the fight.”

Losing a child is devastating. I instantly understood how it could easily destroy or unite a family, debilitate or motivate a mother. We are choosing to unite and motivate each other and use our grief to invigorate our desire to give back and to pay it forward. Join us as we give the gift of life by giving blood… in Bo’s memory.

Make an appointment to donate blood for Bo at the Team BoHawk Blood Drive on Tuesday, July 26, 2011 from 1:00 p.m. – 6:00 p.m. at Ed Martin Honda at 770 N Shadeland Ave., Indianapolis, IN 46219.

For more information about this, previous, and future drives, and other ways to help, visit Corrina and Zach’s blog.

Corrina, thank you for taking the time to share your story with us. Your motivation to give back is an inspiration to everyone. Let’s all take an hour out of our day to Raise Our Sleeves for Bo and his courageous fight.

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